My Turn...

Well... it is only fair to give Elijah his place of honor too. Here he is at the children's hospital. We have waited months to get him in to one of the pediatric neurologist. Ever since he could lift his head he would have times when he would just scream, and take his hand to his head and hit it, rub it, or pull on his hair or ears. Once he could sit up he would all of a sudden just scream horrible painful scream, then roll around and try banging his head. He is completely happy and normal like any other kid his age accept when this happens. As a parent you can tell he is in so much pain, that what ever is going on really hurts him. His cry is not whiney more like an instant surge of pain. It will go on for until he falls asleep from exhaustion. If we give him ibuprofen or Tylenol he will calm down in about 45 mins. We kept telling our pediatrician and I suppose they hear all sorts of things... but I felt like she shrugged it off and said well if he is still having these at 18 months I will make an appointment for you to see the Neurologist.. I brought it up again at the next appointment  and she still wanted to wait. Well that was it, I wanted a second opinion - I mean our little boy is obviously in pain when this happens - and anyone that has witnessed it agrees he is in agony. 

Jason and I took turns recording the episodes onto our video camera. We made an appointment with another pediatrician showed him the video and he was shocked. He immediately made us an appointment with a Pediatric Neurologist at the children's hospital. 

We were told that infants can have migraines - so that is one possibility. It has also been discussed by our new pediatrician and suggested by both my Dr. Brother and my Dr. Brother in-law that he could have a form of Hydrocephalus - (his head tends to swell ). He has a pretty big head, but at the same time he is also placed in the 99th percentile for height, and 70th percentile for weight. 

I guess we will wait and see what the MRI says. 

Our appointment to see the DR isn't until August. And believe me that was a favor to our pediatrician. The wait time to see one of the 14 staffed pediatric neurologists is over a year! So we feel pretty lucky. 

We are not worried, we just want to help our little boy and find out what is causing these episodes of obvious excruciating pain. We are SO blessed to have the miracle of modern medicine. 

So here is our first part of Testing... Our little boy, cute as a button. 

Here he is coming out of sedation. He kept babbling pleeeeeze, pleeeeze.... 

He is so fun, this little one. I love that we have had a baby that loves to be babied. He won over every nurse and care giver. He is just so fun, he loves to laugh and be silly. He is always doing something, starts to laugh, and then says, "I'm Funny!" He is a giggler. The nursing staff was so impressed with his manners. He loves to say; please, thank you, no thank you, your welcome, and bless you if you cough or sneeze. So CUTE! We laugh because his first word was TANK OOO. Some children are just more polite then others. He is our polite child. We love you little squooshy! Thank you for being so much fun!